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رصيد التعليم المستمر

We are proud to support research labs globally to increase recruitment for FASD- and IDD-related research projects. If you have an IRB-approved project you would like to advertise on our website, please reach out to info@fasdcollaborative.com.

Trigeminal Nerve Stimulation for Children with Prenatal Alcohol Exposure Study

Target group: Children 8-12 with prenatal alcohol exposure and symptoms of attention deficit hyperactivity disorder (ADHD)

  • Study conducted in Los Angeles, CA, but is open to participants from anywhere in the U.S.

  • Evaluates the usefulness of Trigeminal Nerve Stimulation (TNS) as a non-medication treatment for children with prenatal alcohol exposure and ADHD symptoms

  • 4-weeks of TNS treatment (two small electrodes placed on the child's forehead during sleep)

  • Receive pre- and post-treatment cognitive and behavioral assessments

  • 2 MRI brain scans (MRI is safe and does not use radiation)

  • Receive a $100 Target gift card upon completion

  • View the research flyer here and fill out the screener

  • Contact us for information or questions at ChildBrainStudy@mednet.ucla.edu or (310) 267-2710
MRI
Sleeping in Green Sheets

FASD and Sleep in Young Adults Study

Target group: Young Adults with FASD worldwide

  • Assessing any young adult ages 18 to 35 years old, including individuals with or without with a history of prenatal alcohol exposure

  • Designed to learn more about sleep in young adults with FASD  by using wearable devices 

  • Participants will wear an OURA ring (a ring that measures activity/sleep) to monitor your sleep at home for two weeks and complete questionnaires + online behavioral testing at home

  • Incentive available for participation

  • View the research flyer here

  • If you are interested in participating or would like more information about this study, please contact Principal Investigator Jackie Soja at psych.sleep@sdsu.edu.

My Health Coach App Study

Target group: Adults with FASD worldwide

  • Targeting adults with an FASD, ages 18 and over, from any country worldwide

  • Co-designed in partnership with the International Adult Leadership Collaborative of FASD Changemakers

  • Data collected through survey responses

  • Incentive available for participation

  • View a 2-minute video explaining the study here

  • Email questions to the team at myhealthcoach@urmc.rochester.edu

  • Sign up here​

Man Trying App
Nice Nurse

PAE & FASD in US Graduate Nursing Curricula Study

Target group: Directors of U.S. graduate midwifery or
NP training programs (PPCNP, FNP, WHNP, PMHNP, NNP, AGNP)

  • To help describe current content about prenatal alcohol exposure (PAE) and fetal alcohol spectrum disorders (FASD) included in the curricula of United States (U.S.) graduate nursing programs

  • Aims to understand barriers and facilitators to enhancing curriculum content on PAE and FASD

  • Must be English-speaking

  • Data collected through survey responses

  • Incentive available for participation

  • View the digital flyer here

  • Access the survey here

Faith and Spirituality Study

Target group: Adults with FASD

  • For adults diagnosed with an FASD, ages 18 and older

  • Must be English-speaking

  • Help spiritual leaders better support people with an FASD

  • Help improve understanding of FASD from a holistic perspective

  • Gift card available for participation

  • View the digital flyer here

Praying Hands
Attentive Therapist

FMF Connect Pro (CIFASD) Study

Target group: Mental Health Providers and Trainees

​

  • For mental health therapists & trainees who treat children ages 3-12 and their families across the United States

  • Ideal for therapists who want an introduction to the effects of prenatal exposures.

  • Having identified children with FASD on caseloads is not required

  • FMF Connect Pro teaches providers how to do routine screening of prenatal alcohol exposure with all clients, apply DSM-5 diagnosis for FASD, and support families using the FMF Connect app

  • Watch a brief video or sign up for the study here

  • Join an introductory webinar and get 1 free hour of CEU here

  • Continuing education provided for psychology, social work, and counseling

  • View the flyer here

  • To learn more visit: https://providers.fmfconnect.com

  • Email: fmfconnect@urmc.rochester.edu

Spatial Development Study

Target group: Children to young adults (ages 12-25) with an intellectual disability (ID) and their parents/caregivers

  • For participants in the United States and Canada

  • Focused on understanding the how spatial abilities develop in typically developing children and people with intellectual disabilities.

  • Participants complete several tasks of learning that are age-appropriate and administered individually.

  • Requires parents to complete several questionnaires about daily behaviors of their children

  • Study sessions conducted via Zoom (2-3 hours, over 2 to 4 sessions).

  • Sessions are recorded and used only for experimental purposes

  • Participants receive a $50 gift card for their time and effort

  • View the digital flyer here

     

Happy Tourist
Job Interview

Community Engagement in FASD Research Study

Target group: Researchers in FASD globally

  • Researchers from any country globally who study FASD, including principal investigators (PIs), research staff, graduate students, etc.)

  • Requires reading and writing in English

  • Focused on understanding barriers and facilitators to community-engaged research practices in the FASD field (both clinical and preclinical work)

  • View the digital flyer here

  • Access the survey here

Parenting Adolescents with FASD Study

Target group: Adolescents with and without FASD and their caregivers

  • Adolescents with and without FASD (12-18 years old) and their caregivers

  • Living in Canada, the United States, the United Kingdom, Australia, or New Zealand

  • Focused on understanding the daily parenting experiences of adolescents with FASD

  • View the digital flyer here

  • To read more about the study visit here

Mother and Son
Technology Class

Thriving with FASD Study

Target group: Young Adults with FASD

  • Young adults ages 18-25 can participate

  • Residents of the US only

  • Involves two interviews on Zoom (~30 minutes each)

  • Try out a goal setting activity and social support network tool

  • Help us learn what helps adults thrive

  • Results will help inform a new program

  • To learn more: https://bit.ly/thrivingFASD

  • Email: thrivelab@urmc.rochester.edu

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