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We are proud to support research labs globally to increase recruitment for FASD- and IDD-related research projects. If you have an IRB-approved project you would like to advertise on our website, please reach out to info@fasdcollaborative.com.
Community Engagement in FASD Research Study
Target group: Researchers in FASD globally
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Researchers from any country globally who study FASD, including principal investigators (PIs), research staff, graduate students, etc.)
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Requires reading and writing in English
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Focused on understanding barriers and facilitators to community-engaged research practices in the FASD field (both clinical and preclinical work)
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View the digital flyer here
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Access the survey here
Spatial Development Study
Target group: Children to young adults (ages 12-25) with an intellectual disability (ID) and their parents/caregivers
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For participants in the United States and Canada
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Focused on understanding the how spatial abilities develop in typically developing children and people with intellectual disabilities.
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Participants complete several tasks of learning that are age-appropriate and administered individually.
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Requires parents to complete several questionnaires about daily behaviors of their children
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Study sessions conducted via Zoom (2-3 hours, over 2 to 4 sessions).
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Sessions are recorded and used only for experimental purposes
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Participants receive a $50 gift card for their time and effort
- View the digital flyer here
Strengths-Based Identification Tool Study
Target group: Caregivers of Children Under 18
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Targeting caregivers of children under the age of 18, with and without neurodevelopmental disorders
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Living anywhere internationally
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Focused on what children have in common as strengths
- View the digital flyer here
Parenting Adolescents with FASD Study
Target group: Adolescents with and without FASD and their caregivers
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Adolescents with and without FASD (12-18 years old) and their caregivers
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Living in Canada, the United States, the United Kingdom, Australia, or New Zealand
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Focused on understanding the daily parenting experiences of adolescents with FASD
- View the digital flyer here
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To read more about the study visit here
Sensory Strategies Study
Target group: Caregivers of Children with FASD
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Caregivers of children ages 0-12 with an FAS or FASD diagnosis can participate
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Study conducted by graduate students from Nazareth University (NY) Occupational Therapy program
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Investigating sensory strategies used by caregivers of children with FASD and where they learned them
- Additional opportunity to participate in a focus group (link for that at the end of the survey below)
- View the flyer here
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To complete the survey visit here
CBT-A Study
Target group: Teens with FASD and/or Caregivers
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Teens with FASD (ages 14-17), caregivers, or both can participate
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Open to individuals living in the US
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This study will help us adapt a mental health therapy for teens with FASD
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This study involves an online survey
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The survey includes short videos explaining parts of the therapy program
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Participants are asked if they make sense and what changes might be needed
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To learn more, click here for the general information flyer or here for details and an interest form
Thriving with FASD Study
Target group: Young Adults with FASD
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Young adults ages 18-25 can participate
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Residents of the US only
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Involves two interviews on Zoom (~30 minutes each)
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Try out a goal setting activity and social support network tool
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Help us learn what helps adults thrive
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Results will help inform a new program
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To learn more: https://bit.ly/thrivingFASD
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Email: thrivelab@urmc.rochester.edu
Court Appointed Special Advocate (CASA) Study
Target group: Family Court Judges
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Residents of US only
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Involves one interview exploring how CASA volunteers can aid in identifying children with FASD and facilitating access to services
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Interviews with CASA staff and personnel have been completed (only recruiting judges at this time)
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View the flyer here
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Find out more information and an interest form here
FMF Connect Pro (CIFASD) Study
Target group: Mental Health Providers and Trainees
Recruitment Target Areas:
July - September 2024: NY State Only
August - December 2024: CA State Only
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Applicable for ALL mental health providers and trainees serving children ages 3-12 and their families
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Having identified children with FASD on caseloads is not required
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FMF Connect Pro teaches providers how to do routine screening of prenatal alcohol exposure with all clients, apply DSM-5 diagnosis for FASD, and support families using the FMF Connect app
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Continuing education provided for psychology, social work, and counseling
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View the flyer here
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To learn more visit: https://providers.fmfconnect.com