Increasing Access to Care for People with FASD Across the Lifespan

Increasing Access to Care for People with FASD Across the Lifespan

Presenters: Christie L. M. Petrenko, Ph.D., Research Associate Professor and Dir. of Clinical Training, University of Rochester and Lynn L. Cole, DNP, RN, PPCNP-BC, Clinical Director & Assoc. Div. Chief, Associate Professor of Clinical Nursing, University of Rochester Medical Center

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Description

FASD is a highly prevalent developmental disability that impacts physical health, learning, and behavior. Unfortunately, most people with FASD experience delayed, missed, or mis-diagnosis, and significant barriers to accessing intervention. Low FASD awareness, diagnostic capacity, and access to FASD-informed interventions are primary drivers of these challenges. This session will provide an overview of our clinical and research initiatives to increase access to care. This will include practical examples of how we systematically built and increased diagnostic capacity and family support programs over time, which could be generalized to other settings. We will also highlight research findings on 3 different intervention packages across the lifespan that leverage technology to increase accessibility and overcome significant barriers to care.

About the Presenters

Christie (McGee) Petrenko, Ph.D. is a clinical psychologist and researcher who has been conducting research with individuals with FASD since 2003. She completed her graduate training with Edward Riley and Sarah Mattson in San Diego, CA in 2009 and is currently a faculty member at Mt. Hope Family Center, University of Rochester. Her research focuses on developing and evaluating interventions for people with FASD, including the use of mobile health technology to increase access to care. She has experience training teams of providers both regionally and internationally in FASD diagnosis. Dr. Petrenko also co-directs a multidisciplinary FASD clinic providing diagnostic, intervention, and family support services in Rochester, NY.   

Lynn L. Cole, DNP is a pediatric nurse practitioner who has been caring for children with developmental disabilities since 1997. She completed her doctoral education at the University of Rochester and is currently a faculty member at the University of Rochester School of Nursing.  She leads the clinical services for Developmental and Behavioral Pediatrics where she focuses on program development and strategies to increase access to care for children with FASD and other developmental disabilities.  Dr. Cole co-directs the FASD clinic in Rochester, NY.

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